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My ALS Wish for our Anniversary

David and I will be celebrating our 25th wedding anniversary on August 14,  but not without several obstacles that we are willing to overcome. 

My name is Tammy Michaels and I was diagnosed with Amyotrophic Lateral Sclerosis aka ALS or Lou Gerhig’ Disease  on October 18, 2019. 

Before my diagnosis we would take an anniversary trip every year.  It has been five years since we took an anniversary trip. 

David and I have three sons.  Our youngest is a service member, so he will not be able to join us this trip. We  did get to see him on April 1st, which was a huge surprise and blessing. 

Some of the limitations were multiple surgeries, infections and safe transportation. 

Now that my pain is manageable and I have had my tracheostomy for a year, we would love to take a vacation late summer with our boys and nurse to celebrate 25 years of adventure. 

The past 5 years have been a whirlwind of  hospital visits, infections, tears, frustration and God’s grace. 

We would love to take a train vacation from Maine to New Orleans.  The trip would include hotel stays, meals for six people.  Two of our boys, my husband and I,  and my nurse and her husband. I am immobile and completely vent dependent so any special moments I could have with my family will be some wonderful memories I hope to freeze in time. 

During this trip I plan to document the trip, take pictures and videos.  All will be shared on my blog called Tamurai’s Adventure. 

Any additional funds will go towards paying off my accessible van and medical finances. 

I want to thank you personally for taking the time to read my story. 

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