Have you seen her? Tell me have you seen her.

Talk about a blast from the music past for those who grew up in the late 80s early 90s. If you don’t have the song stuck in your head you must look it up.

Well, onto my original post that is short and sweet.

Welcome to therapy Thursday Lou Gehrig’s disease, where I get to share and you have something to read. Let’s just say it has been a week. I think I have not shared for that long and it has been crazy.
Monday I went on a field trip with Nicole and Kaylee to see wound care. It was a first for all of us. I never leave the house without David. There were only a few minor difficult moments but I tried to prepare myself for those ahead of time because I know taking me out is a challenge.
The doctor’s visit was a success and Nicole was trained for treating my hypergranulation at home.

To give you an idea of how long it takes to get me ready and in the van without skipping daily routine. We started at 8:30 A.M. and left my house at 12:30 P.M. The only break was 15 minutes before leaving so the girls had food in their bellies.

It takes a lot to leave the house.

Tuesday we celebrated Emma’s birthday and Stephanie got vent training so that she knew how my vent works and what the alarms mean. I was very exhausted Tuesday from Monday. So I rested most of the day.

That night I got to spend time with Nicole while David took respite and hung with the guys.
Wednesday was another down day and counseling. Which brings up emotion. I have been pretty tired.

Today the port and catheter changed. Then my weekly blood draw.
I think Friday and Sunday are the only days I don’t have something scheduled. Although I kinda want to go to church if the weather holds off until that evening.
So there you have it, my wild week!


#rockinals #tamuraisadventure #rockinALS #LouGehrigsdisease