First I would like to say…

First I would like to say that anything you read in this post is not to cause controversy, it may strike feelings of hurt, disappointment or anger. Please know that this post is to share the raw and the real. To share how I am processing my disease, how I survive another day.  The people …

Oh honey, sugar sugar…

Oh honey, sugar sugar… Such a cute little song to brighten the day. What a day yesterday was! Giant kudos to Nicole, not only did she come in on her day off yesterday and deep clean half of the house. (that is a big job )She also worked today and from 11:30 A.M. To 4P.M. …

Tea Time with Tammy and a Smile.

Time is short. I’m learning that one lives longer when they live a happy life. Nicole, my nurse and great friend could see the loneliness had brought me into a very dark place of sadness and depression.It was then we realized that maybe people don’t know it’s okay to visit. Maybe they don’t know when …

I understand what ALS has done to us.

ALSAmyotrophic Lateral Sclerosis I prefer Always Live Smiling Today may be difficult for some that have lost their love on this day. Some may find it difficult as today their life changed with a simple yet difficult saying, “you have ALS”. I hope these words find you some peace on the day cupid runs around …

Happy Valentine’s Day my love!

Always proofread before posting, lol, Take two In the last 24 hours you have felt every emotion possible. Anger/defeat – she doesn’t want me at the hospital. I’m always with her no matter what Sadness – love can make one feel sadness. The pulling at the heart, wondering what happens if you are not there. …

The Bare Truth and Me

Checking in : My mood is stable, I’m sleeping through the night somewhat. I do have an infection and will know what kind soon. Nicole did spudum and blood cultures yesterday. Nicole and Kaylee have come up with ways to keep me busy. Tea time and participating in art shows across the state displaying my …