ALS

The word of the day – patience

Patience… Have you ever sent an email /text that was completely taken the wrong way?Have you been on the receiving end and your little voice read the message as rude, angry, sad or happy? In a world like today, everything is communicated through a pc, phone, tablet, etc… Families are disconnected because it’s a internet …

ALS

I need suctioning. Help me!

Here I sit because my suction machine battery will not keep a charge.Here i sit because I have to much mucus.I’ve become a prisoner.Frustration levels are so high one would think that it’s an exaggeration of how I feel.I can’t tell you how I feel when I can’t breatheMy jaw shakes uncontrollably, so much so …